Journal articles / evidence

  1. Anderson B, Kralik D. Palliative care at home: Carers and medication management. Palliat Support Care. 2008; 6(4):349-356.
  2. Bowers B, Pollock K, Barclay S. Administration of end-of-life drugs by family caregivers during covid-19 pandemic. BMJ 2020;369:m1615 (Published 24 April 2020)
  3. Brown J, Chen S, Smith P. Evaluating a community-based family caregiver training program. Home Health Care Manag Pract. 2013; 25(2):76-83.
  4. Chellappan S, Ezhilarasu P, Gnanadurai A, George R, Christopher S. Can symptom relief be provided in the home to palliative care cancer patients by the primary caregivers? An Indian study. Cancer Nurs. 2014; 37(5):E40-47.
  5. Dredge A, Oates L, Gregory H, King S. Effective change management within an Australian community palliative care service. Br J Community Nurs. 2017; 22(11):536-541.
  6. Flowers C, McLeod F. Diluent choice for subcutaneous infusion: a survey of the literature and Australian practice. Int J Palliat Nurs. 2005; 11(2):54-60.
  7. Freemantle A, Clark D, Crosby V. Safer ambulatory syringe drivers: experiences of one acute hospital trust. Int J Palliat Nurs. 2011; 17(2):86-91.
  8. Healy S, Israel F, Charles M, Reymond L. An educational package that supports laycarers to safely manage breakthrough subcutaneous injections for home-based palliative care patients: Development and evaluation of a service quality improvement. Palliat Med. 2013;27(6):562-570
  9. Healy S, Israel F, Charles M, Reymond L. Laycarers can confidently prepare and administer subcutaneous injections for palliative care patients at home: A randomized controlled trial. Palliat Med. 2018; 32(7):1208-1215.
  10. Healy S, Israel F, Charles M, Reymond L. Caring Safely at Home Project Final Report (331kb pdf). 2012. Brisbane: Brisbane South Palliative Care Collaborative.
  11. Hopkins C, Eastwood I2, Poolman M et al. Designing a mobile app which supports unpaid carers to administer subcutaneous injections. BMJ Supportive & Palliative Care 2021; 11(Issue Suppl 2).
  12. Israel F, Reymond L, Slade G, Menadue S, Charles MA. Lay caregivers’ perspectives on injecting subcutaneous medications at home. Int J Palliat Nurs. 2008; 14(8):390-395.
  13. Julião M. Administration of end-of-life drugs by family caregivers during COVID-19: opportunity for future home prescribing plans. BMJ 2020; 369  doi: (Published 17 June 2020)
  14. Lee L, Headland C. Administration of as required subcutaneous medications by lay carers: developing a procedure and leaflet. Int J Palliat Nurs. 2003; 9(4):142-149.
  15. Lee L, Howard K, Wilkinson L, Kern C, Hall S. Developing a policy to empower informal carers to administer subcutaneous medication in community palliative care; a feasibility project. Int J Palliat Nurs. 2016; 22(8):369-378. 
  16. Lewis M, Heneghan J, Burdon J. A service evaluation of a new policy to support carers giving subcutaneous anticipatory medications at home at end of life within Southern Derbyshire, population of 607,000. BMJ Supportive & Palliative Care 2021; 11(Suppl 1): A47-A47.
  17. Parker D, Reymond L, Cooper K, Tieman J, Ivyian S. Home symptom management training programme: carer evaluation. BMJ Supportive and Palliative Care 2022;0:1–8. doi:10.1136/bmjspcare-2022-003580.
  18. Perkins P, Parkinson A, Taylor V, Husband M. Nasal fentanyl and buccal midazolam carer administration ‘as needed’ for breakthrough symptom control in a specialist palliative care unit: a nested qualitative study. BMJ Supportive & Palliative Care 2021; 11(4):
  19. Poolman M, Roberts J, Byrne A et al. CARer-ADministration of as-needed subcutaneous medication for breakthrough symptoms in home-based dying patients (CARiAD): study protocol for a UK-based open randomised pilot trial. Trials 2019; 20:105.
  20. Popert S, Robson D. Supporting carers to administer end of life subcutaneous medication in the community. BMJ Supportive & Palliative Care 2021; 11(Issue Suppl 2).
  21. Reymond L, Parker G, Gilles L, Cooper K. Home-based palliative care. Aust J Gen Pract. 2018; 47(11): 747-752.
  22. Rose M, Currow DC. The need for chemical compatibility studies of subcutaneous medication combinations used in palliative care. J Pain Palliat Care Pharmacother. 2009; 23(3): 223-230.
  23. Rosenberg JP, Bullen T, Maher K. Supporting Family Caregivers With Palliative Symptom Management: A Qualitative Analysis of the Provision of an Emergency Medication Kit in the Home Setting. AJHPM. 2015; 32(5): 484-489.
  24. Saltmarsh P. A commentary on ‘Administration of as required subcutaneous medications by lay carers’. Int J Palliat Nurs. 2003; 9(5):222-223.
  25. Tait PA, Cheung WH, Wiese M, Staff K. Improving community access to terminal phase medicines in Australia: identification of the key considerations for the implementation of a ‘core medicines list’. Aust J Prim Health. 2017; 23(4):373-378.
  26. Walker J, Lane P, McKenzie C. Evidence-based practice guidelines: a survey of subcutaneous dexamethasone administration. Int J Palliat Nurs. 2010; 16(10):494-498.
  27. Wilson E, Caswell G, Turner N, Pollock K. Managing medicines for patients dying at home: A review of family caregivers’ experiences. J Pain Symptom Manage. 2018.
  28. Yap R, Akhileswaran R, Heng CP, Tan A, Hui D. Comfort care kit: use of nonoral and nonparenteral rescue medications at home for terminally ill patients with swallowing difficulty. J Palliat Med. 2014; 17(5):575-578.


Page last updated 1 February 2023